Hello! We are the Beedle Family. My husband Adam and I have two beautiful daughters who happen to be living with CLN2 Batten Disease. Annabelle has a sweet and gentle spirit. She loves all things pink, babies, books, and her little sister. Abigail lives up to her middle name and shares JOY with everyone she meets. Abigail loves puppies, the beach, and horseback riding with her older sister Annabelle. As a family, we share our story in hopes of bringing help not only to our children but to ALL children affected. We welcome you to journey along with us!
Support Batten Families with the Beedles
The Beedle Family has asked that any funds raised through this page be used to Support Batten families with the help of the BDSRA Foundation. This includes programs like the Batten Family Help Fund, Equipment Exchange Program, Annual Family Conference stipends, and many more! If you would like to make a donation to Support Programs alongside the Beedle Family please donate! Connect with Us Facebook
Beedles in the News
The Beedles are busy these days! Click on the pictures or videos below to see what Adam, Amanda, Abigail, & Annabelle are up to, and be sure to check back in for updates on their journey!
'We still have joy:' St. Anne family continues despite pending grief
Braving Batten Disease: Hope for Annabelle & Abigail
