Jacoby's Legacy

Jacoby was a delightful soul. He was diagnosed in early 2015 after a long search for what was happening. Jacoby won the war in 2020. Our hope is that we can help raise awareness and help ensure other families have the hero they need.

BDSRA is a blessing for so many families. Unfortunately Batten Disease is very rare and there are not many resources for families. This organization is like a road map! They will help you navigate where you need to be, go, help find other resources, all while searching endlessly for a cure!

$23.69

of $10,000.00 goal raised

Donate

	Tammie Hill	$13.39 32 days ago
	Beth Fries	$10.30 52 days ago