Hello, my name is Sean. I am 11 years old with CLN2 Batten Disease. I was diagnosed in 2021 after my first seizure in 2018. My mom cannot have outside employment because she needs to be there whenever I have a seizure, fall or struggle to communicate. My dad works very hard to provide for the family; he misses a lot of work to take me to my medical and therapy appointments. I currently receive my missing enzyme through an all day infusion. This very expensive treatment will slowdown the progression of the disease in hopes of a cure.



The Moore family is partnering with BDSRA Foundation to raise funds to support their mission. BDSRA will use the funds to support families, attend advocacy events, and research.




You may also support The Moore Family and BDSRA by visiting our retail apparel online store at BattenBattle.com. Help spread awareness at the same time raising funds. 5% of every Batten Disease collection goes to BDSRA.