I have faced many health challenges in the last few years, but I have been blessed with treatments and a cure. I am grateful for the prayers, love, and support of friends, family, and my care team. But I cannot let go of the many Batten families who fight every day for the same opportunities. So I am asking for your help.

Batten disease steals children a little bit every day until they slip away from us all. There are 13 different known versions--some affecting adults as well--which makes it harder to diagnose, let alone discover treatments and cures. We need funding to continue to create awareness, support families, and fund research. Will you support me in my 5k walk? Would you like to buy a T-shirt? Could you make a donation to BDSRA Foundation? 

Your prayers for our Batten families are important to me as well, so I ask that you send all the positive thoughts, vibes, and energy to them on June 9 as well. If you feel the urge, download the racing bib, write in your "why" and post it on your social media for us. It's only a rare disease because not enough people know about it. Please join me as a #BattenAdvocateforaCure