Join us Friday, June 9th 2023 at 6:00pm at North Seatac Park and Ball Fields. We will meet by the soccer fields for light snacks and refreshments and then walk/run/stroll/ride at the North Seatac Park Trail. Wear your Avengers Assemble for Anthony shirts, Batten Disease Awareness shirts or a shirt with your favorite superhero. Let's raise awareness together!

Park in the larger parking lot off of 128th Street, we will have a table set up.

What is the IBAD 5k? The International Batten Awareness Day 5k raises funds to help the Batten Disease Support and Research Association (BDSRA) in their mission - to support affected families, fund and facilitate research, and move the needle forward toward more therapies and a cure for Batten Disease. Your registration and dontations go directly to support the BDSRA. Make sure to post using #BattenDay2023!

Team Avengers Assesmble for Anthony is made up of family, friends, teachers and therapsit who are dedicated to maintaining Anthony's quality of life and building awareness around CLN7 Batten Disease. All registration proceeds and donations go to the BDSRA (501c3). You can also show support by downloading a bib and taking a picture and sending to Amanda.

About Us: Anthony is 7-years-old and was diagnosed with CLN7 Batten Disease in July of 2021. Anthony participates in physical therapy, occupational therapy, speech therapy and a range of other medical appointments to maintain his current skills and quality of life. Anthony loves all things superheros and enjoys being outside. Anthony has the most contagious smile and laugh and always manages to light up the room. Anthony lives with his mother, who is a full time School Social Worker and enjoys spending time with his cousin-brother Camden (4), aunts, Janiyah (14) and Tiana, grandparents Tamara and Jamar and the family dog Loki.

You can also show your support by taking a picture with a bib and emailing it to Amanda.

Email: a.simington08@gmail.com

Follow our Batten Disease Journey: 

Tiktok: justMandiandAnt

Let's raise awareness together! Avengers Assemble!