Hello Everyone,

Again this year, we are participating in the International Batten Disease Awareness Day Virtual 5K Walk.

Place: Bloomingdale Park - Staten Island

Meeting at: The Surrey's @ 6pm on Friday, June 9th, walk will happen at the park if you desire, refreshments to follow.

Our goal is to raise awareness, support research, and most important support BDSRA Foundation financially. Hope you can help out and spread awareness. 

Thank you from The Surrey's and the Batten Families!

Janet & Fred