🌟🌟💜WE ARE A GO! AIR QUALITY IMPROVED

AND WEATHER CLEAR AND BEAUTIFUL ☀️☀️

Join us Friday, June 9th, 10AM, in the Little Flower School parking lot, to enjoy some donuts & coffee, then walk/run/scoot/sit on a bench/bike or stroll on the Capital Crescent Trail, Bethesda, Maryland. 

 If you are unable to join Friday, you can still register and..

Run/walk/bike/swim a 5k (or a 1k, anything goes, it's virtual!), done all at once or in increments, on your own time (before or on June 9)

If you don’t want to do a 5k, you can simply donate to our team (we would love to reach our goal of $4000!).

 

[on mobile go to Fundraise Now Sign Up Join or support an existing team — search for “Team Penelope”]

 

OR..Send the kids down for a walk and enjoy your first morning of summer

 

Schedule of events -- Little Flower School, Bethesda, MD

We welcome you to wear your IBAD 5k tshirt, anything PURPLE (Pen's favorite color), or TEAL!

10AM: Gather under the tent, enjoy donuts, coffee, water and a variety of other cold drinks

Join us in a prayer for all Batten kids and families, and those fighting critical pediatric illnesses

10:45AM: Walk to the Crescent Trail and follow our *2-mile loop* to the tunnel and back, or walk/run your own preferred distance (we anticipate returning to LFS by noon)

 

In the event of rain we will cancel the walk

 

Thank you for your continued support and prayers. We hope to see you there!

 

What is the IBAD 5k? The International Batten Awareness Day 5k raises funds to help the Batten Disease Support and Research Association (BDSRA) in their mission - to support affected families, fund and facilitate research, and move the needle forward toward more therapies and a cure for Batten Disease. You can complete your 5k any time, wherever you'd like - your registration goes directly to support the BDSRA. Make sure to post using #BattenDay2023!

Team Penelope is made up of family, friends, teachers, therapists, and doctors who are dedicated to maintaining Penelope’s quality of life, and building awareness of CLN2 Batten Disease. Join us June 9th, or virtually - all registration proceeds go to the BDSRA (501c3).

About Us: Penelope is 9 years old, diagnosed with CLN2 Batten Disease in September of 2017. Our medical team infuses enzymes directly into her brain every two weeks - these treatments slow her disease, but ultimately this is not a cure. Pen lives in Bethesda, Maryland, with her Mom & Dad, and two older siblings, Declan (12) and Avery (13).

Email: Claudia Fennell - claudia.p.fennell@gmail.com 

Facebook: Claudia Branton Fennell

Instagram @claudiafennell