Our Fam Funds are working hard to raise money in honor of International Batten Disease Awareness Day.  The total represented here is the combined total from all Fam Funds from May 15 - June 15, 2025.  Fam Funds are individual families that share their story year round, advocate for Batten Disease, and support the mission of the BDSRA through their unique fundraising efforts.  

Donate to a Specific Fam Fund

We invite all of our Batten Families to become a Fam Fund.  Sharing your story is the greatest power you have.  Fam Funds gives you the space to do that and the support to fundraise for the mission.