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Ellory


Seven-year-old Ellory loves art and riding horses. She started horse therapy a few years ago and she fell in love with it. She finds peace at the barn and feels happy to have a place where she is welcomed and unjudged by those around her.  Ellory also loves to dance, draw and tell stories. She has a cat, a dog, and a service dog in training that she adores and she loves her 3 younger siblings more than anything. 

At the age of 3 years, Ellory went in for a common surgery to have her tonsils and adenoids removed and ear tubes inserted.  When she woke up the next day, everything changed.  She stopped eating, had to have a Ng tube inserted, then had a G tube surgically placed.  Her immune system that was already weak stopped working all together.  She developed intense OCD and her personality changed until she was given long-term antibiotics.  She developed tics (motor, oral, nasal), experienced muscle weakness, and her cognitive development and speech also were impacted.  She currently has 22 doctors on her team across 4 cities and multiple states and they are still uncovering many layers as time goes on.

Ellory’s diagnoses include PTSD, Epileptic seizures, ESES (a rare form of epilepsy that strikes at night), PANS/PANDAS (autoimmune encephalitis), and a rare genetic mutation. IVIG treatments will help improve her weakened immune system, slow the epileptiform activity down, and reduce her behavioral issues such as tics, anxiety, and OCD. In addition, her service dog in training has entered an intensive training program for seizure alert training which is very expensive. Beyond the IVIG and further service dog training, there are still a lot of medical expenses involved with tests and appointments for Ellory. 

IVIG Treatments, Seizure Alert Service Dog Training & Miscellaneous Medical Expenses - $10,000

Total Raised

$10,000.00

of $10,000.00 goal raised
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Donors
Benefit Attendees
$5,000.00
525 days ago
LovelikeJJ
$2,500.00
409 days ago
Anonymous
$1,500.00
295 days ago
Griffin Bruehl
$1,000.00
413 days ago
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