Hi!

We are the Beedle Family. My husband Adam and I have two beautiful daughters, Annabelle and Abigail, both living with CLN2 Batten Disease. 

As a family we have defined it as our mission to bring brighter days to the Batten Community. 

All proceeds from this virtual event will go directly towards supporting the mission of the BDSRA Foundation. 

With gratitude and always in HOPE;

The Beedle Family

Adam, Amanda, Annabelle, and Abigail Joy