June 9, 2024
Our goal is to raise awareness and funds by advocating for the Batten disease community affected by all CLN types.
Together, We Are Batten Advocates for a Cure.
About this event: Join us as we celebrate Batten families around the world and raise awareness and funds! The BDSRA Foundation is hosting the 2024 International Batten Disease Awareness Day Virtual 5K on Sunday, June 9th, 2024. You don’t have to participate in the virtual 5K to advocate for Batten disease. This year, we’re providing a variety of activities for you to raise awareness and funds for Batten disease and BDSRA.
Activities: Here’s how you can advocate!
Team Ollie T |
$8,274.33
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Love for Amorabella |
$5,028.00
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Team Connor B |
$1,604.40
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LOVE FOR LIAM |
$1,325.25
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Emma's Roses (Dellomorte) |
$1,263.00
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Global Seafood Alliance for Isla! |
$787.65
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DaxxDeserves |
$673.90
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Hope for Izzy |
$661.00
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Hope for Sam |
$560.75
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Beedles Braving Batten |
$403.75
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Brynn’s Buddies |
$378.00
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Mimi’s Squad |
$355.55
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Amicus Science |
$340.00
|
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Team Eagle |
$225.75
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Team Michele & Lauren |
$200.00
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Team 4 Titus and Ely |
$200.00
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Avengers Assemble for Anthony |
$150.75
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BDSRA Staff Team |
$140.00
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The Smith Warriors |
$128.75
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Weimer Lab |
$111.50
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Christopher Hawkins'sTeam |
$100.00
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Isla's Army |
$95.00
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Connor's Crusade |
$25.00
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Fighting for Conner |
$25.00
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