Laurel Williams's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$49.00

of $20.00 goal raised

Donate

4 of 10

RANK WITHIN TEAM

217 of 329

RANK OVERALL

	Patti Ward generously donated $3.00 722 days ago
	Jeff Castelli generously donated $5.00 727 days ago
	Gary LaSasso generously donated $5.00 727 days ago
	Bradley Campbell generously donated $11.00 729 days ago
	Laurel Williams generously donated $25.00 744 days ago

Laurel Williams's Fundraising Page

$49.00

of $20.00 goal raised

International Batten Awareness Day 2024