June 9, 2024
Our goal is to raise awareness and funds by advocating for the Batten disease community affected by all CLN types.
Together, We Are Batten Advocates for a Cure.
About this event: Join us as we celebrate Batten families around the world and raise awareness and funds! The BDSRA Foundation is hosting the 2024 International Batten Disease Awareness Day Virtual 5K on Sunday, June 9th, 2024. You don’t have to participate in the virtual 5K to advocate for Batten disease. This year, we’re providing a variety of activities for you to raise awareness and funds for Batten disease and BDSRA.
Activities: Here’s how you can advocate!
Team Ollie T |
$6,886.28
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Love for Amorabella |
$3,333.75
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Team Connor B |
$669.90
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Brynn’s Buddies |
$378.00
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Global Seafood Alliance for Isla! |
$371.90
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Hope for Sam |
$360.75
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DaxxDeserves |
$344.30
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Hope for Izzy |
$205.00
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The Smith Warriors |
$128.75
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Mimi’s Squad |
$115.00
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Christopher Hawkins'sTeam |
$100.00
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Team Eagle |
$100.00
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BDSRA Staff Team |
$95.00
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Weimer Lab |
$76.50
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LOVE FOR LIAM |
$50.75
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Avengers Assemble for Anthony |
$25.00
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Fighting for Conner |
$25.00
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Connor's Crusade |
$25.00
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