Stacy Thoene's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$1,087.75

of $20.00 goal raised

Donate

3 of 36

RANK WITHIN TEAM

22 of 329

RANK OVERALL

Team Ollie T

	Andy & Karen Leise	$500.00 184 days ago
	Lisa Thoene	$200.00 185 days ago
	Luke Gentrup	$100.00 213 days ago
	Britt	$29.00 165 days ago
	Rick Goeden	$27.00 205 days ago
	Donner Family	$26.00 202 days ago
	Diane Carson	$25.75 178 days ago
	Anonymous	$25.00 212 days ago
	Anonymous	$15.00 184 days ago
	Anonymous	$13.00 209 days ago

Stacy Thoene's Fundraising Page

$1,087.75

of $20.00 goal raised

International Batten Awareness Day 2024