Nick Harmon's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$20.00

of $20.00 goal raised

Donate

34 of 36

RANK WITHIN TEAM

303 of 329

RANK OVERALL

	Von Lambert	$7.00 219 days ago
	Sean Mahaffey	$4.00 200 days ago
	Anonymous	$3.00 194 days ago
	Bridget Melton	$2.00 196 days ago
	Hayley Feeney	$1.00 196 days ago
	Nora Kilby	$1.00 194 days ago
	Micki Winskill Henrard	$1.00 194 days ago
	Dacia Sheppard	$1.00 191 days ago

Nick Harmon's Fundraising Page

$20.00

of $20.00 goal raised

International Batten Awareness Day 2024