Terry Thoene's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$2,685.25

of $20.00 goal raised

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Team Ollie T

	Racheal Folkers generously donated $7.00 543 days ago
	Ashley Krajewski generously donated $1.00 543 days ago
	Renee De Villiers generously donated $25.00 543 days ago
	Ryan Rasmussen generously donated $1.00 543 days ago
	Anonymous generously donated $100.00 543 days ago
	Britt generously donated $29.00 543 days ago
	Linda Sakowski generously donated $2.00 543 days ago
	Robert Heine generously donated $1.00 543 days ago
	Allie Koth generously donated $2.00 543 days ago
	Cindy Hennen generously donated $75.00 543 days ago

Terry Thoene's Fundraising Page

$2,685.25

of $20.00 goal raised

International Batten Awareness Day 2024