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Terry Thoene's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure. 

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.

Advocate


Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org
Total Raised

$2,685.25

of $20.00 goal raised
1 of 36
RANK WITHIN TEAM
6 of 329
RANK OVERALL
Terry's Team
Team Ollie T
$13,719.33
Donors
Racheal Folkers generously donated $7.00
543 days ago
Ashley Krajewski generously donated $1.00
543 days ago
Renee De Villiers generously donated $25.00
543 days ago
Ryan Rasmussen generously donated $1.00
543 days ago
Anonymous generously donated $100.00
543 days ago
Britt generously donated $29.00
543 days ago
Linda Sakowski generously donated $2.00
543 days ago
Robert Heine generously donated $1.00
543 days ago
Allie Koth generously donated $2.00
543 days ago
Cindy Hennen generously donated $75.00
543 days ago
Event
From:6/10/2024 11:49 AM
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