Terry Thoene's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$2,685.25

of $20.00 goal raised

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1 of 36

RANK WITHIN TEAM

6 of 329

RANK OVERALL

Team Ollie T

	Wuebben Trucking LLC	$1,030.00 235 days ago
	Capitol Heating	$500.00 241 days ago
	Chris Steffen	$257.50 239 days ago
	Jeani Guenther	$103.00 234 days ago
	Matthew Vandersnick	$103.00 232 days ago
	Eric Wieseler	$100.00 215 days ago
	Anonymous	$100.00 195 days ago
	Cindy Hennen	$75.00 195 days ago
	Matt Thoene	$75.00 235 days ago
	Andria Vredenburg	$50.00 211 days ago

Terry Thoene's Fundraising Page

$2,685.25

of $20.00 goal raised

International Batten Awareness Day 2024