Stephanie Bright's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$38.00

of $20.00 goal raised

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	Dacia Sheppard generously donated $1.00 539 days ago
	Micki Winskill Henrard generously donated $1.00 542 days ago
	Nora Kilby generously donated $1.00 542 days ago
	Anonymous generously donated $3.00 542 days ago
	Bridget Melton generously donated $2.00 544 days ago
	Hayley Feeney generously donated $1.00 544 days ago
	Sean Mahaffey generously donated $4.00 548 days ago
	Stephanie Bright generously donated $25.00 562 days ago

Stephanie Bright's Fundraising Page

$38.00

of $20.00 goal raised

International Batten Awareness Day 2024