Claudia Fennell's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$240.00

of $20.00 goal raised

Donate

1 of 5

RANK WITHIN TEAM

81 of 329

RANK OVERALL

	Astrid Soulard	$64.00 126 days ago
	Isabelle McHugh	$51.00 116 days ago
	Claudia Fennell	$25.00 128 days ago
	Claudia Fennell	$25.00 128 days ago
	Claudia Fennell	$25.00 128 days ago
	Claudia Fennell	$25.00 128 days ago
	Pamela Breves	$20.00 115 days ago
	Lucy Elliott	$5.00 118 days ago

Claudia Fennell's Fundraising Page

$240.00

of $20.00 goal raised

International Batten Awareness Day 2024