Maggie Darmanjian's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$314.00

of $20.00 goal raised

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	Kristin Robar	$137.00 171 days ago
	Kristin Robar	$68.00 169 days ago
	Maggie Darmanjian	$25.00 173 days ago
	Kristin Robar	$25.00 166 days ago
	Laurie Brochu	$20.00 167 days ago
	Christopher Sperruzzi	$20.00 166 days ago
	Maggie Darmanjian	$10.00 173 days ago
	Jean Smith	$5.00 163 days ago
	Anonymous	$4.00 162 days ago

Maggie Darmanjian's Fundraising Page

$314.00

of $20.00 goal raised

International Batten Awareness Day 2024