Maggie Darmanjian's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


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Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

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	Anonymous generously donated $4.00 663 days ago
	Jean Smith generously donated $5.00 664 days ago
	Kristin Robar generously donated $25.00 667 days ago
	Christopher Sperruzzi generously donated $20.00 667 days ago
	Laurie Brochu generously donated $20.00 668 days ago
	Kristin Robar generously donated $68.00 670 days ago
	Kristin Robar generously donated $137.00 672 days ago
	Maggie Darmanjian generously donated $25.00 674 days ago
	Maggie Darmanjian generously donated $10.00 674 days ago

Maggie Darmanjian's Fundraising Page

$314.00

of $20.00 goal raised

International Batten Awareness Day 2024