Nora Peitz's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$260.00

of $20.00 goal raised

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Team Ollie T

	Britt	$29.00 165 days ago
	Rick Goeden	$27.00 205 days ago
	Donner Family	$26.00 202 days ago
	Anonymous	$16.00 184 days ago
	Anonymous	$13.00 209 days ago
	Mike Becker	$9.00 211 days ago
	Kelli Taylor	$8.00 212 days ago
	Brett Noecker	$7.00 212 days ago
	Racheal Folkers	$7.00 165 days ago
	Lance Heine	$7.00 167 days ago

Nora Peitz's Fundraising Page

$260.00

of $20.00 goal raised

International Batten Awareness Day 2024