Isla's Army's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$576.75

of $10,000.00 goal raised

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Isla's Army

	Richard N Saunders	$100.00 166 days ago
	Honey and Brick Saunders	$51.00 165 days ago
	Denyse Blaney	$50.00 165 days ago
	Alice Saunders	$50.00 166 days ago
	Gail Lavoie	$50.00 166 days ago
	Kati Rybicki	$50.00 165 days ago
	Laura Deetz	$25.00 165 days ago
	Brittany Berry	$25.00 196 days ago
	Cheryl Hynds	$25.00 194 days ago
	Linda Harte	$25.00 166 days ago

Isla's Army's Fundraising Page

$576.75

of $10,000.00 goal raised

International Batten Awareness Day 2024