Violet Jason's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$232.50

of $20.00 goal raised

Donate

5 of 18

RANK WITHIN TEAM

84 of 329

RANK OVERALL

	Ross Metzler generously donated $8.00 610 days ago
	Adrienne Clakeley generously donated $1.00 611 days ago
	Gina Falvo generously donated $4.00 612 days ago
	Randi McGovern generously donated $4.00 612 days ago
	Christy McKee generously donated $4.00 612 days ago
	Mitch Romero generously donated $8.00 612 days ago
	Lauren Dorsch generously donated $100.00 612 days ago
	Hannah Mckinnis generously donated $15.00 612 days ago
	Joshua Tilko generously donated $8.00 612 days ago
	Oriana Iden generously donated $8.00 613 days ago

Violet Jason's Fundraising Page

$232.50

of $20.00 goal raised

International Batten Awareness Day 2024