Mat Beckmann 's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$119.00

of $20.00 goal raised

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Team Ollie T

	Britt	$30.00 195 days ago
	Anonymous	$16.00 214 days ago
	Lance Heine	$8.00 197 days ago
	Racheal Folkers	$7.00 195 days ago
	Anonymous	$6.00 201 days ago
	Walross Basit	$4.00 223 days ago
	Molly Ruhland	$4.00 213 days ago
	Jim and Karol Carroll	$3.00 199 days ago
	katie broman	$3.00 199 days ago
	Albina Kalyushik	$3.00 212 days ago

Mat Beckmann 's Fundraising Page

$119.00

of $20.00 goal raised

International Batten Awareness Day 2024