avatar

Lisa Ferguson's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure. 

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.

                 
      Advocate          
                 


Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org

Total Raised

$75.00

of $200.00 goal raised
3 of 6
RANK WITHIN TEAM
171 of 329
RANK OVERALL
Lisa's Team
Connor's Crusade
$1,613.45
Donors
Lisa Ferguson
$50.00
195 days ago
Lisa Ferguson
$25.00
195 days ago
Event
From:6/10/2024 11:49 AM
Sharing is Caring
Powered by Powered By CharityEngine