Liam Walden's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


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Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

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$70.00

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	Anonymous generously donated $3.00 542 days ago
	Bridget Melton generously donated $1.00 544 days ago
	Hayley Feeney generously donated $1.00 544 days ago
	Anonymous generously donated $50.00 545 days ago
	Sean Mahaffey generously donated $4.00 548 days ago
	Von Lambert generously donated $7.00 567 days ago
	Robyn Deterding generously donated $4.00 582 days ago

Liam Walden's Fundraising Page

$70.00

of $20.00 goal raised

International Batten Awareness Day 2024