Theo Swanson's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$134.00

of $20.00 goal raised

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RANK WITHIN TEAM

121 of 329

RANK OVERALL

	James Roberson	$28.00 199 days ago
	Stephanie Antoniewicz	$20.00 206 days ago
	Hannah Mckinnis	$15.00 199 days ago
	Skylar Bulkley	$12.00 204 days ago
	Ross Metzler	$9.00 197 days ago
	Oriana Iden	$8.00 199 days ago
	Joshua Tilko	$8.00 199 days ago
	Ted Lawson	$8.00 206 days ago
	Mitch Romero	$8.00 199 days ago
	Christy McKee	$4.00 199 days ago

Theo Swanson's Fundraising Page

$134.00

of $20.00 goal raised

International Batten Awareness Day 2024