Edwina Fennell's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$301.00

of $20.00 goal raised

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RANK WITHIN TEAM

60 of 329

RANK OVERALL

	Pamela Breves generously donated $20.00 576 days ago
	Isabelle Mchugh generously donated $51.00 577 days ago
	Lucy Elliott generously donated $5.00 579 days ago
	Edwina Fennell generously donated $25.00 579 days ago
	Edwina Fennell generously donated $200.00 579 days ago

Edwina Fennell's Fundraising Page

$301.00

of $20.00 goal raised

International Batten Awareness Day 2024