Joanne Padley's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$215.00

of $20.00 goal raised

Donate

3 of 22

RANK WITHIN TEAM

86 of 329

RANK OVERALL

	Shirley Miller	$50.00 170 days ago
	Joanne Padley	$45.00 211 days ago
	Erica E	$25.00 196 days ago
	Linda Velazquez	$25.00 176 days ago
	Shannan McNamara	$17.00 203 days ago
	Sarah Salky	$15.00 181 days ago
	The Hawkins Family	$5.00 181 days ago
	Corey Peng	$5.00 191 days ago
	Carolynne Padley	$5.00 187 days ago
	Meghan Dollar	$5.00 168 days ago

Joanne Padley's Fundraising Page

$215.00

of $20.00 goal raised

International Batten Awareness Day 2024