Mark Thompson's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$128.50

of $20.00 goal raised

Donate

3 of 9

RANK WITHIN TEAM

125 of 329

RANK OVERALL

	Mark Thompson	$45.00 240 days ago
	Mike Kocsis	$26.50 239 days ago
	Noelle Wisneski	$17.00 194 days ago
	Ashley Hart	$12.00 240 days ago
	Ryan Weide	$11.00 194 days ago
	Elise Avallon	$5.00 194 days ago
	Stefan Mraz	$4.00 194 days ago
	Denise Gurshin	$3.00 227 days ago
	Anonymous	$3.00 194 days ago
	Ashley Hart	$2.00 194 days ago

Mark Thompson's Fundraising Page

$128.50

of $20.00 goal raised

International Batten Awareness Day 2024