Derek Lofgren's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


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Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

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	nasiem Shine generously donated $4.00 809 days ago
	Meghan Dollar generously donated $5.00 809 days ago
	McGrath family generously donated $3.00 812 days ago
	The Hawkins Family generously donated $5.00 822 days ago
	Sarah Salky generously donated $15.00 822 days ago
	Carolynne Padley generously donated $5.00 829 days ago
	Corey Peng generously donated $5.00 833 days ago
	Mary Pirozzoli generously donated $3.00 843 days ago
	Sarah Wood generously donated $3.00 843 days ago
	Shannan McNamara generously donated $17.00 845 days ago

Derek Lofgren's Fundraising Page

$65.00

of $20.00 goal raised

International Batten Awareness Day 2024