Chesney Lofgren's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


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Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$66.50

of $20.00 goal raised

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RANK WITHIN TEAM

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RANK OVERALL

	nasiem Shine generously donated $4.00 689 days ago
	Meghan Dollar generously donated $5.00 689 days ago
	McGrath family generously donated $3.00 691 days ago
	The Hawkins Family generously donated $5.00 702 days ago
	Sarah Salky generously donated $15.00 702 days ago
	Carolynne Padley generously donated $5.00 709 days ago
	Corey Peng generously donated $5.00 712 days ago
	Mary Pirozzoli generously donated $3.00 722 days ago
	Sarah Wood generously donated $3.00 722 days ago
	Shannan McNamara generously donated $18.50 724 days ago

Chesney Lofgren's Fundraising Page

$66.50

of $20.00 goal raised

International Batten Awareness Day 2024