June 9, 2024

Together, We Are Batten Advocates for a Cure. 

Welcome!  Thank you for visiting Team Charlie's page in support of International Batten Disease Awareness Day 2024. We hope you will consider supporting us by donating or becoming a team member!

Family and friends of Charlie Sims founded "Team Charlie" after Charlie was diagnosed at age 6 with CLN1 disease, a form of Batten disease, in 2023. We are focused on creating awareness and giving back to help children with rare pediatric diseases.