Matthew Jason's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


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Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$552.00

of $20.00 goal raised

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RANK WITHIN TEAM

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RANK OVERALL

	Keith Rivers generously donated $75.00 635 days ago
	Ross Metzler generously donated $8.00 656 days ago
	Adrienne Clakeley generously donated $1.00 657 days ago
	Gina Falvo generously donated $3.00 658 days ago
	Randi McGovern generously donated $4.00 658 days ago
	Christy McKee generously donated $3.00 658 days ago
	Mitch Romero generously donated $7.00 658 days ago
	Hannah Mckinnis generously donated $15.00 658 days ago
	Joshua Tilko generously donated $8.00 658 days ago
	Oriana Iden generously donated $8.00 658 days ago

Matthew Jason's Fundraising Page

$552.00

of $20.00 goal raised

International Batten Awareness Day 2024