Matthew Jason's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$552.00

of $20.00 goal raised

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RANK WITHIN TEAM

38 of 329

RANK OVERALL

	Katie Houghtaling	$150.00 206 days ago
	Yelena Galler	$100.00 205 days ago
	Keith Rivers	$75.00 176 days ago
	Jennifer Harris	$50.00 205 days ago
	Susan Kocher	$50.00 206 days ago
	James Roberson	$27.00 199 days ago
	Stephanie Antoniewicz	$20.00 206 days ago
	Hannah Mckinnis	$15.00 199 days ago
	Skylar Bulkley	$11.00 204 days ago
	Ted Lawson	$8.00 206 days ago

Matthew Jason's Fundraising Page

$552.00

of $20.00 goal raised

International Batten Awareness Day 2024