Connor Brown's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$622.75

of $20.00 goal raised

Donate

1 of 6

RANK WITHIN TEAM

34 of 329

RANK OVERALL

	The Eberhardt	$103.00 170 days ago
	The Herzog Family	$103.00 169 days ago
	Laura Denise Brown	$103.00 166 days ago
	Meinert family	$100.00 170 days ago
	Kristopher Buckman	$50.00 167 days ago
	Dee Ready	$25.75 165 days ago
	Aimee Copenhafer	$25.75 165 days ago
	Ashley Pulver	$25.75 165 days ago
	Jennifer Hennessy	$25.75 169 days ago
	Danielle Nicholls	$25.75 169 days ago

Connor Brown's Fundraising Page

$622.75

of $20.00 goal raised

International Batten Awareness Day 2024