Connor Brown's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$828.75

of $20.00 goal raised

Donate

1 of 6

RANK WITHIN TEAM

30 of 329

RANK OVERALL

	The Grabczak Family generously donated $206.00 322 days ago
	Ashley Pulver generously donated $25.75 543 days ago
	Aimee Copenhafer generously donated $25.75 543 days ago
	Dee Ready generously donated $25.75 543 days ago
	Amanda Kerner generously donated $10.00 543 days ago
	Laura Denise Brown generously donated $103.00 544 days ago
	Kristopher Buckman generously donated $50.00 545 days ago
	Mikalene Stoker generously donated $25.00 547 days ago
	Jennifer Hennessy generously donated $25.75 547 days ago
	The Herzog Family generously donated $103.00 547 days ago

Connor Brown's Fundraising Page

$828.75

of $20.00 goal raised

International Batten Awareness Day 2024