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Silas Batz's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure. 

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.

Advocate


Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org
Total Raised

$161.00

of $20.00 goal raised
4 of 8
RANK WITHIN TEAM
104 of 329
RANK OVERALL
Silas's Team
Hope for Izzy
$1,386.50
Donors
Victor Buccat generously donated $6.00
543 days ago
Samantha Isenberg generously donated $13.00
543 days ago
Emily Levin generously donated $13.00
543 days ago
Natalie McLaury generously donated $6.00
543 days ago
Olivia Reichold generously donated $6.00
547 days ago
Todisman’s generously donated $3.00
549 days ago
Allison White generously donated $19.00
579 days ago
Ed Maggart generously donated $26.00
579 days ago
Bethami Grossman generously donated $63.00
579 days ago
Melissa Ridings generously donated $6.00
579 days ago
Event
From:6/10/2024 11:49 AM
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