Silas Batz's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$161.00

of $20.00 goal raised

Donate

4 of 8

RANK WITHIN TEAM

103 of 329

RANK OVERALL

	Bethami Grossman	$63.00 231 days ago
	Ed Maggart	$26.00 231 days ago
	Allison White	$19.00 231 days ago
	Emily Levin	$13.00 195 days ago
	Samantha Isenberg	$13.00 195 days ago
	Victor Buccat	$6.00 195 days ago
	Olivia Reichold	$6.00 199 days ago
	Natalie McLaury	$6.00 195 days ago
	Melissa Ridings	$6.00 231 days ago
	Todisman’s	$3.00 201 days ago

Silas Batz's Fundraising Page

$161.00

of $20.00 goal raised

International Batten Awareness Day 2024