Silas Batz's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$161.00

of $20.00 goal raised

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RANK WITHIN TEAM

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RANK OVERALL

	Victor Buccat generously donated $6.00 543 days ago
	Samantha Isenberg generously donated $13.00 543 days ago
	Emily Levin generously donated $13.00 543 days ago
	Natalie McLaury generously donated $6.00 543 days ago
	Olivia Reichold generously donated $6.00 547 days ago
	Todisman’s generously donated $3.00 549 days ago
	Allison White generously donated $19.00 579 days ago
	Ed Maggart generously donated $26.00 579 days ago
	Bethami Grossman generously donated $63.00 579 days ago
	Melissa Ridings generously donated $6.00 579 days ago

Silas Batz's Fundraising Page

$161.00

of $20.00 goal raised

International Batten Awareness Day 2024