Katie Brown's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


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Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$768.00

of $20.00 goal raised

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	Anonymous generously donated $206.00 763 days ago
	Jingles & Oreo generously donated $250.00 775 days ago
	katherine wilcoxson generously donated $100.00 775 days ago
	Amanda Kerner generously donated $10.00 775 days ago
	Stephanie Kras generously donated $30.00 776 days ago
	The Roaches generously donated $122.00 777 days ago
	Bre Falcone generously donated $50.00 780 days ago

Katie Brown's Fundraising Page

$768.00

of $20.00 goal raised

International Batten Awareness Day 2024