Katie Brown's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$768.00

of $20.00 goal raised

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	Jingles & Oreo	$250.00 195 days ago
	Anonymous	$206.00 183 days ago
	The Roaches	$122.00 196 days ago
	katherine wilcoxson	$100.00 195 days ago
	Bre Falcone	$50.00 200 days ago
	Stephanie Kras	$30.00 196 days ago
	Amanda Kerner	$10.00 195 days ago

Katie Brown's Fundraising Page

$768.00

of $20.00 goal raised

International Batten Awareness Day 2024