Connor Burkhardt's Fundraising Page

June 9, 2024

Together, We Are Batten Advocates for a Cure.

Contact your legislators by sending them a pre-written letter through our advocacy module. The pre-written letter urges your congressional representatives to drive legislative efforts prioritizing Newborn Screening for CLN2 Batten disease and to petition the FDA to adopt a more agile approval process for rare and ultra-rare disease treatments.


			Advocate

Welcome to your personal fundraiser page!

Participants may customize their personal fundraising page with photos, a summary of their Batten journey, and fundraising goals.

Have a team fundraising page? Give it a shoutout, and advocate by visiting the main International Batten Disease Awareness Day page and browsing the activities.

For questions or assistance, please email support@bdsrafoundation.org.

$727.75

of $20.00 goal raised

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1 of 22

RANK WITHIN TEAM

33 of 329

RANK OVERALL

	CLS Gator Girls	$500.00 173 days ago
	Staci LaPerriere	$100.00 208 days ago
	Anonymous	$34.00 211 days ago
	Jenny Flynn	$25.75 177 days ago
	Shannan McNamara	$17.00 203 days ago
	Sarah Salky	$14.00 181 days ago
	Corey Peng	$5.00 191 days ago
	Carolynne Padley	$5.00 187 days ago
	Trisha Payne	$4.00 210 days ago
	Diana Mulholland	$4.00 210 days ago

Connor Burkhardt's Fundraising Page

$727.75

of $20.00 goal raised

International Batten Awareness Day 2024