Our goal is to honor and support those affected by Batten disease and to raise awareness and funds so BDSRA can continue to advocate for all CLN types.

About this event: Join us as we celebrate families around the world and raise awareness and funds! BDSRA is hosting the 2023 International Batten Disease Awareness Day Virtual 5K on Friday, June 9th, 2023.

What exactly IS a Virtual 5K?: It is just like any other 5K, except there is no official race location. The virtual part of this means no traveling and no early start times! It also means you get to choose where, with whom, and even how you want to complete the 5K. This 5K can be done at any time leading up to June 9th. It can even be done in increments, keep track of your distance until you hit the 5K.

How to participate to raise funds and awareness: This event is open to individuals of all ages and abilities. Once you register, either as an individual or as part of a team, the focus then shifts to raising funds. Set a personal/team fundraising goal and encourage your family, friends, community, etc. to donate to your fundraisers. BDSRA set a $10,000 goal this year. The proceeds you raise towards that goal help BDSRA build and maintain staff who'll provide compassionate support and advocacy for all types of Batten disease.

During International Batten Disease Awareness Day we ask participants to post pictures of themselves on their 5K route. Tag BDSRA in your posts and use the hashtag #BattenDay2023. By using #BattenDay2023 and tagging BDSRA on your social media posts, we will be able to keep up with the fun. 

T-Shirts: Pictured below are this year's T-shirts.

The deadline to order T-shirts has passed.

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Racing Bibs: Who are you running for in this virtual 5K? Click the button below to download this year's racing bib and write who you're dedicating your virtual walk/run for. Share on social media, use the hashtag #BattenDay2023, and tag BDSRA to have your post shared! 

Total Raised

$55,943.92

of $10,000.00 goal raised
Top Fundraisers
Brittany Berry's Fundraising Page
$3,063.20
Kati Rybicki's Fundraising Page
$2,378.25
Janet Surrey's Fundraising Page
$2,022.00
Laura Goupil's Fundraising Page
$1,527.05
Giacomo Graniello's Fundraising Page
$1,443.00
Daxx Deserves
$1,187.80
Becca Kerl's Fundraising Page
$1,120.00
Jessie Tierney's Fundraising Page
$1,037.00
Stacy Thoene's Fundraising Page
$1,014.25
Oliver Thoene's Fundraising Page
$910.00
Kimberly Fair's Fundraising Page
$905.50
Oliver Thoene's Fundraising Page
$778.60
Penelope Fennell's Fundraising Page
$541.00
Connor Burkhardt's Fundraising Page
$536.45
Lindsay Jason's Fundraising Page
$496.75
Avery Fennell's Fundraising Page
$485.00
Joanne Padley's Fundraising Page
$478.25
Emma Dellomorte's Fundraising Page
$464.00
Samantha Isenberg's Fundraising Page
$454.35
Leisa Larson's Fundraising Page
$451.50
Declan Fennell's Fundraising Page
$421.00
Kirsten Cowley's Fundraising Page
$391.65
Tracy Peitz's Fundraising Page
$371.10
Amanda Simington's Fundraising Page
$365.50
Anthony Simington's Fundraising Page
$358.00
Jessica Bevelacqua's Fundraising Page
$332.75
Karen Thoene's Fundraising Page
$323.00
Lori Schumacher's Fundraising Page
$310.00
Sheila Dugan's Fundraising Page
$305.75
Peg Peitz 's Fundraising Page
$301.00
Jennifer Burchett's Fundraising Page
$296.50
Courtney Miller 's Fundraising Page
$293.00
Madison Chao's Fundraising Page
$291.00
Jennifer Dellomorte's Fundraising Page
$286.00
Amy Peitz's Fundraising Page
$285.00
Bethesda Bootcampers (Purley)'s Fundraisin...
$284.00
Tracy Peitz's Fundraising Page
$283.00
Kate Hopson's Fundraising Page
$276.75
Diana Saenz's Fundraising Page
$267.00
Carolyn Ruyak's Fundraising Page
$262.00
Jen Kunzweiler 's Fundraising Page
$257.00
Sarah Salky's Fundraising Page
$254.00
Christina Ohnsman's Fundraising Page
$252.75
Dave Hopson/NCEM/ARES's Fundraising Page
$248.00
Jill Weimer's Fundraising Page
$245.00
Piers Fennell's Fundraising Page
$244.00
Amy Beagle's Fundraising Page
$239.00
Tori Peitz's Fundraising Page
$238.00
Tori Peitz's Fundraising Page
$238.00
Melinda Perry's Fundraising Page
$234.00
Travis Moore's Fundraising Page
$227.00
Ashley Baumgartel's Fundraising Page
$222.00
Aaron Fulkner 's Fundraising Page
$220.75
Matthew Jason's Fundraising Page
$213.50
Laura N's Fundraising for Oliver
$206.50
Kathy Cope's Fundraising Page
$206.00
Mindy Carr's Fundraising Page
$189.00
Mindy Carr's Fundraising Page
$188.00
Miller’s Fundraising Page
$185.50
Mary Dugan's Fundraising Page
$184.00
Sheila Dugan's Fundraising Page
$184.00
Michael Dugan's Fundraising Page
$183.50
Alyssa Richard 's Fundraising Page
$176.18
Melanie Landreth's Fundraising Page
$172.00
Cory French's Fundraising Page
$171.00
Team Penelope to Beat Batten
$170.50
Annabel Yeager's Fundraising Page
$163.00
Chesney Lofgren's Fundraising Page
$162.45
James Thoene's Fundraising Page
$160.00
Zachary Stanton's Fundraising Page
$152.00
Rachel Beckmann 's Fundraising Page
$149.00
Jared Midwood's Fundraising Page
$148.00
Shannan McNamara's Fundraising Page
$147.00
Bridget DeLellis's Fundraising Page
$145.00
Mikey DeLellis's Fundraising Page
$144.00
Laura Pisani's Fundraising Page
$143.00
Giulia McPherson 's Fundraising Page
$143.00
Amy Fenton Parker's Fundraising Page
$142.00
Kevin Cope's Fundraising Page
$135.10
Tammy Morrissey's Fundraising Page
$135.00
Michelle Parker's Fundraising Page
$131.75
Theresa Beardsley 's Fundraising Page
$130.00
J.D. DeLellis's Fundraising Page
$129.00
Bridget DeLellis's Fundraising Page
$128.25
Jennifer Moreau's Fundraising Page
$125.00
Karissa Raderstorf's Fundraising Page
$125.00
Erika Gaglione's Fundraising Page
$124.00
Win Cheung's Fundraising Page
$124.00
Tricia Walker's Fundraising Page
$124.00
Stefanie McLeese's Fundraising Page
$123.00
Jessica Dangler's Fundraising Page
$123.00
Kimberlee Harrison's Fundraising Page
$122.00
Brendan Devine's Fundraising Page
$122.00
Leisa Larson's Fundraising Page
$122.00
Sarah DeWaele's Fundraising Page
$122.00
Joanne Shaughnessy's Fundraising Page
$122.00
Kristy Stevens's Fundraising Page
$122.00
Keri Loughlin's Fundraising Page
$122.00
Cory Gravesmill's Fundraising Page
$119.00
Shirley Isenberg's Fundraising Page
$119.00
Maureen Paur's Fundraising Page
$114.00
Susan Duren's Fundraising Page
$113.00
Sarah Probst Miller's Fundraising Page
$110.00
Erika Butcher's Fundraising Page
$109.00
Claire Koukol's Fundraising Page
$105.00
Akriti Virdi's Fundraising Page
$104.50
Cliff Noble's Fundraising Page
$102.25
Olivia Tallamy's Fundraising Page
$101.00
April Ferguson's Fundraising Page
$99.00
Aimee Sanford 's Fundraising Page
$98.00
Kristin Freeland's Fundraising Page
$97.00
Nate Smith's Fundraising Page
$97.00
Danielle Sliter's Fundraising Page
$96.00
Alex Bailey's Fundraising Page
$95.50
Laura Jones's Fundraising Page
$92.00
Anthony Dellomorte's Fundraising Page
$92.00
Joni Watkins's Fundraising Page
$92.00
Joline McDonough's Fundraising Page
$92.00
Norah Milo's Fundraising Page
$92.00
Angela Cramer's Fundraising Page
$92.00
Michaelene Milo's Fundraising Page
$91.50
Kara Meister's Fundraising Page
$90.00
Nancy Coyne's Fundraising Page
$88.00
Tammy Morrissey's Fundraising Page
$88.00
Darren Furasek's Fundraising Page
$87.00
Jessica Dicken's Fundraising Page
$84.00
Stephanie McClarnand's Fundraising Page
$84.00
Jessica Padley's Fundraising Page
$84.00
Danika Linville's Fundraising Page
$84.00
Jessica Padley's Fundraising Page
$83.00
Chesney Lofgren's Fundraising Page
$83.00
Lauren Caldwell's Fundraising Page
$81.00
Eric Baumgartel's Fundraising Page
$80.90
Meghan Dollar's Fundraising Page
$80.00
Raza Zaidi's Fundraising Page
$79.00
Laura Van Sant's Fundraising Page
$78.00
Claude Piercy's Fundraising Page
$78.00
Turtle Power for Jeff Montavon
$78.00
Subhodaya Karki's Fundraising Page
$77.50
Jim Isenberg's Fundraising Page
$77.00
Erik Wienclawski's Fundraising Page
$77.00
Anisha Karki's Fundraising Page
$77.00
Rolane Qian's Fundraising Page
$74.00
Meghan Wirtz's Fundraising Page
$74.00
Blythe Dollar's Fundraising Page
$74.00
Bridget Melton 's Fundraising Page
$74.00
Kristine Bonagofsky's Fundraising Page
$73.00
LeAndra Vogelzang's Fundraising Page
$73.00
Kathy Deitch's Fundraising Page
$72.00
Emily Juarez's Fundraising Page
$72.00
Brian Burkhardt's Fundraising Page
$70.50
Jessica Weeks's Fundraising Page
$70.00
Brian McNamara's Fundraising Page
$69.75
Nicole Guyton's Fundraising Page
$69.00
Karina Escobar's Fundraising Page
$69.00
Tammy Lafleche's Fundraising Page
$68.00
Mia Krumtinger 's Fundraising Page
$66.00
Mickey Dollar's Fundraising Page
$65.00
Amanda Pankau's Fundraising Page
$65.00
Ben Meister's Fundraising Page
$65.00
Kristen Kimmel's Fundraising Page
$65.00
Karilyn Holden's Fundraising Page
$64.00
Monica Towner's Fundraising Page
$64.00
Kelly Sanders's Fundraising Page
$63.00
Kristin Blacker's Fundraising Page
$63.00
Tony Blacker's Fundraising Page
$63.00
Kristin Blacker's Fundraising Page
$63.00
Tosha Valentine's Fundraising Page
$63.00
Rachel ONeill's Fundraising Page
$63.00
Emily Carlyle's Fundraising Page
$62.00
Kristin Cothren's Fundraising Page
$62.00
Karilyn Holden's Fundraising Page
$61.00
Billy Walden's Fundraising Page
$60.50
Becky Statton's Fundraising Page
$60.00
Bridget Frerichs's Fundraising Page
$59.00
Daniel Canorro's Fundraising Page
$58.90
Kaitlin Tharp's Fundraising Page
$58.00
April Ferguson's Fundraising Page
$58.00
Nela Loftin's Fundraising Page
$57.75
Allie Koth's Fundraising Page
$57.00
Allyson Garrett's Fundraising Page
$57.00
Kate Sumerfield's Fundraising Page
$56.00
Baley Milton's Fundraising Page
$56.00
Dana Doheny's Fundraising Page
$56.00
Maddi McConnaughhay's Fundraising Page
$55.00
Sarah Salky's Fundraising Page
$55.00
Mark Towne's Fundraising Page
$55.00
Lexi Sandman's Fundraising Page
$54.00
Janet Yu's Fundraising Page
$54.00
April Tepe's Fundraising Page
$54.00
Joelle's Fundraising Page
$53.00
Ryan Tracy's Fundraising Page
$52.00
Patrick Kotnik's Fundraising Page
$52.00
Gina Sarge's Fundraising Page
$52.00
Sherrie Ketcham's Fundraising Page
$51.50
Jill Weimer's Fundraising Page
$51.00
Osman Sheikh's Fundraising Page
$51.00
Josie Beckmann 's Fundraising Page
$51.00
Nicole Kovell's Fundraising Page
$51.00
Kelly Bennett's Fundraising Page
$51.00
Molly Cirone's Fundraising Page
$51.00
Jamie Lourash's Fundraising Page
$51.00
Monica Towner's Fundraising Page
$51.00
Mary Alexander's Fundraising Page
$51.00
Abby Lee's Fundraising Page
$51.00
Erika Kane's Fundraising Page
$51.00
Aaron Blaine's Fundraising Page
$50.75
Mat Beckmann 's Fundraising Page
$50.50
Laurel Williams's Fundraising Page
$50.50
Nadia Effimova's Fundraising Page
$50.00
Aparna Pathmanathan's Fundraising Page
$50.00
Tyler Johnson's Fundraising Page
$50.00
Nicki Mehta's Fundraising Page
$50.00
Paige Koziol's Fundraising Page
$50.00
April Rhodes's Fundraising Page
$50.00
Dylan Beckmann 's Fundraising Page
$50.00
Molly Santella 's Fundraising Page
$50.00
Amanda Ryder's Fundraising Page
$50.00
Tracie Altman's Fundraising Page
$50.00
Jennifer Yoder's Fundraising Page
$48.00
Dave Hopson's Fundraising Page
$47.75
Myra Johnson's Fundraising Page
$47.00
Hannah Gibson's Fundraising Page
$47.00
Nora Kilby's Fundraising Page
$46.00
Lisa Ellis's Fundraising Page
$45.00
Courtney Meister 's Fundraising Page
$45.00
Dakota Meister 's Fundraising Page
$45.00
Courtney Meister 's Fundraising Page
$45.00
Susan Darnell 's Fundraising Page
$45.00
Sydney Thomas's Fundraising Page
$45.00
Caitlin Robinson's Fundraising Page
$44.00
Diana Saenz's Fundraising Page
$44.00
Anna Donovan's Fundraising Page
$44.00
Himali Wickramasinghe's Fundraising Page
$43.00
Crystal Nelson's Fundraising Page
$42.00
Fernanda Leal's Fundraising Page
$42.00
Jason Stanley's Fundraising Page
$42.00
Jason Stanley's Fundraising Page
$42.00
Tia Singer's Fundraising Page
$42.00
Mary Snow's Fundraising Page
$42.00
Lisa Marie Garman's Fundraising Page
$42.00
For EllaMaesEndeavor
$42.00
Cathy Smith's Fundraising Page
$42.00
Cathy Smith's Fundraising Page
$42.00
Amy Pfingsten's Fundraising Page
$42.00
Mila Pfingsten 's Fundraising Page
$42.00
Ryker Pfingsten 's Fundraising Page
$42.00
Amy Pfingsten's Fundraising Page
$42.00
Susie Jones's Fundraising Page
$42.00
NOAH SIEDMAN's Fundraising Page
$42.00
Corrin Jackson's Fundraising Page
$42.00
Misty LaRochelle's Fundraising Page
$42.00
Kathi Shambaugh's Fundraising Page
$42.00
Lexie Beccue's Fundraising Page
$38.00
Joe McPherson's Fundraising Page
$37.75
Joseph McPherson 's Fundraising Page
$37.50
Maria McPherson 's Fundraising Page
$37.20
Rocco McPherson 's Fundraising Page
$37.00
Lori Ballard's Fundraising Page
$37.00
Laura Dieter's Fundraising Page
$36.00
Lauryl McKenry's Fundraising Page
$36.00
Julia Carroll's Fundraising Page
$35.00
Prativa Karki's Fundraising Page
$34.50
Snehata Karki's Fundraising Page
$34.04
Rebecca Moser's Fundraising Page
$33.00
Clarissa Booth's Fundraising Page
$33.00
Nancy Drake-Loftin's Fundraising Page
$32.00
Bethany Simpson-Stagg's Fundraising Page
$32.00
Joyce Clemmons's Fundraising Page
$32.00
Bonnie Donaldson's Fundraising Page
$32.00
Max Walden's Fundraising Page
$30.50
James Lee's Fundraising Page
$30.00
Crystal Zulauf's Fundraising Page
$30.00
Lalezka Granados Lopez's Fundraising Page
$29.75
Emilie Lee's Fundraising Page
$29.50
Brenda Blacker's Fundraising Page
$29.50
Rebecca Canorro's Fundraising Page
$29.00
Robert Canorro's Fundraising Page
$29.00
Andrew Canorro's Fundraising Page
$29.00
Sheyla Finkner's Fundraising Page
$29.00
Denise Barnes's Fundraising Page
$28.00
Samantha Basak's Fundraising Page
$27.00
Lexi Hopson's Fundraising Page
$25.75
Isaiah Hopson's Fundraising Page
$25.75
Karlee Albert's Fundraising Page
$24.00
Melissa Pratt's Fundraising Page
$24.00
Eric Pratt's Fundraising Page
$24.00
Freya Pratt's Fundraising Page
$24.00
Luca Pratt's Fundraising Page
$24.00
Hannah Leppert's Fundraising Page
$23.00
Sydney Kreutzmann's Fundraising Page
$23.00
Seth Walters's Fundraising Page
$23.00
Connor's Courage
$22.00
Cherryl Ranta's Fundraising Page
$22.00
Erin Crowe's Fundraising Page
$22.00
Michael Crowe's Fundraising Page
$22.00
Erin Crowe's Fundraising Page
$22.00
Kate Kolstad's Fundraising Page
$22.00
Michelle Robar's Fundraising Page
$22.00
Charles Robar's Fundraising Page
$22.00
Denise Barnes's Fundraising Page
$22.00
Melissa Ricks's Fundraising Page
$22.00
Turtle Ricks's Fundraising Page
$22.00
Drayson Ricks's Fundraising Page
$22.00
Melissa Ricks's Fundraising Page
$22.00
Ally Midwood's Fundraising Page
$22.00
Nga Hilvano's Fundraising Page
$22.00
Sarah Markert's Fundraising Page
$22.00
Laura Eversole's Fundraising Page
$22.00
Laura Eversole's Fundraising Page
$22.00
Elad Firnberg's Fundraising Page
$22.00
Robyn Furasek's Fundraising Page
$19.75
Andrew Jackson's Fundraising Page
$17.00
Sylvia Miller's Fundraising Page
$16.50
Landon Koth's Fundraising Page
$16.25
Estella Miller's Fundraising Page
$16.20
Vance Ferguson's Fundraising Page
$16.00
Kristy Clark's Fundraising Page
$16.00
Samuel Miller's Fundraising Page
$15.75
Matt Miller's Fundraising Page
$15.75
Sophia French's Fundraising Page
$14.00
Ryan Stevens's Fundraising Page
$14.00
Jennifer Palermo's Fundraising Page
$11.50
Aaron Jones's Fundraising Page
$11.25
Philip Palermo's Fundraising Page
$11.00
Amelia Palermo's Fundraising Page
$11.00
Mo Tracy's Fundraising Page
$10.50
Peyton Mayes's Fundraising Page
$9.75
John Perry's Fundraising Page
$8.00
Alex Lourash's Fundraising Page
$4.75
Terri Sterling's Fundraising Page
$4.00
Michael Sterling's Fundraising Page
$4.00
Sara Scheetz's Fundraising Page
$3.00
Mason Kennedy's Fundraising Page
$2.75
Andrew Geske 's Fundraising Page
$2.00
Jarrett Griffin 's Fundraising Page
$2.00
Carrie Ray's Fundraising Page
$0.00
Christopher Velona's Fundraising Page
$0.00
Jessica Rivas's Fundraising Page
$0.00
Sebastian Velona's Fundraising Page
$0.00
Jacob Munaker's Fundraising Page
$0.00
Lucy Robinson's Fundraising Page
$0.00
Elizabeth Guyton's Fundraising Page
$0.00
Tina Horn's Fundraising Page
$0.00
David Horn's Fundraising Page
$0.00
Clara Butcher 's Fundraising Page
$0.00
Cadence Clapp's Fundraising Page
$0.00
Lucy Robinson's Fundraising Page
$0.00
Gregg Paur 's Fundraising Page
$0.00
Mitchell McClarnand's Fundraising Page
$0.00
Jarrod Dicken 's Fundraising Page
$0.00
Chase Holden's Fundraising Page
$0.00
Amelia Leach's Fundraising Page
$0.00
Jared Leach's Fundraising Page
$0.00
Garrett Coyne's Fundraising Page
$0.00
Palmer Coyne's Fundraising Page
$0.00
Joe Coyne's Fundraising Page
$0.00
Ashley Khader's Fundraising Page
$0.00
Blake Ballasso's Fundraising Page
$0.00
Brice Linville's Fundraising Page
$0.00
JACK's Fundraising Page
$0.00
Stephen Donaldson's Fundraising Page
$0.00
Roberto Escobar's Fundraising Page
$0.00
Top Teams
Team Isla
$9,596.50
Team Ollie T
$8,562.80
Team Penelope to Beat Batten
$5,184.45
Team Connor
$3,292.15
Love for Liam
$3,020.45
Daxx Deserves
$2,977.80
Team Michele & Lauren
$2,047.00
Emma's Roses (Dellomorte)
$1,843.15
REGENXBIO
$1,797.15
Larson Team Trio
$1,771.25
Hope for Izzy
$1,585.39
Ella Belle
$1,442.15
Team Princess Lilly
$1,205.00
Run, Walk, Stroll, Hike, or Bike to fight ...
$905.50
Leighton's Army
$830.75
Amicus Science
$744.25
Weimer Lab
$735.75
Avengers Assemble for Anthony
$723.50
Team Amelia
$474.25
Larsons Finding the Light
$451.50
The Patterson Clan
$388.50
Team Tara
$356.00
Peyton Strong
$251.75
BDSRA Staff Team
$236.00
Jeni Montavon'sTeam
$180.25
Running for Ryker
$168.00
Mimis Squad
$168.00
Connors Crusade
$125.00
Team BioMarin
$122.00
Miller Family Team
$117.00
Westley’s Wish
$84.00
Hope For Ashlynn
$73.50
Finally Middle Schoolers
$66.00
EllaMaesEndeavor
$42.00
Team SEBI
$0.00
Jack's Thousand Days
$0.00
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